There are approximately 1.6 million cancer survivors across Canada, and there are more people entering the survivorship phase than ever before. Despite increasing numbers, survivorship is a well-recognized but poorly understood gap in cancer control, due to the lack of availability of consistent and reliable data on what individuals experience in the post-treatment period. To better understand the challenges related to cancer survivorship, the Canadian Partnership Against Cancer conducted the Experiences of Cancer Patients in Transition Study (‘Transitions Study’) in collaboration with 10 provincial cancer agencies and programs across Canada. As the first national survey of its kind, the study provides foundational information about the experience of over 13,000 cancer survivors following completion of their cancer treatment to identify opportunities to drive system improvements and enhance the quality of life of those affected by cancer.

The survey was designed to answer the following questions:

  • What are the needs of cancer survivors 1-3 years after treatment (physical, emotional, practical, and informational)? What are the biggest unmet needs?
  • Who are the most vulnerable cancer survivors? What personal characteristics are associated with unmet needs/poor outcomes?
  • What factors/system resources are correlated with needs being met? What are the enablers/predictors of needs being met/positive outcomes being achieved?

Transitions Study data from all Canadian provinces is now available for use by research, practice and policy specialists. All available quantitative and qualitative data is raw but has personal and provincial identifiers removed. To access and download the data, please complete the data access form